Hypotonia and Pearl
Jul. 11th, 2011 07:31 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
emma_in_dreamI realised today that I am in the interesting position of being able to compare Pearl when she is well (a month ago) and not well (now). Her hypotonia doesn't compare to real illness, of course - every time I go to the State Child Development Centre I see some child with a terrible, debilitating condition and I am so grateful that Pearl is relatively so well.
Nonetheless I can see how much easier it is when Pearl is well. I'm not talking about having a cold or whatever, I mean the difference when her muscles aren't aching and support her properly.
When she has a bad patch of hypotonia she whines constantly, about everything, she complains about her sore muscles, she cries when she is picked up because the pressure hurts her, she falls over all the time and then she cries because she has no reserves of strength left.
When she has a good run with the hypotonia she occasionally falls over, the way most three year olds do, she occasionally has crying fits and she sometimes is unreasonable. She is, in short, the sort of child who is described in parenting books, the kind of child that the techniques experts suggest actually work on.
Taking care of her when she is well is so incredibly much easier.
I had a sudden realisation today that this is part of the reason that I find parenting such heavy weather sometimes.
Nonetheless I can see how much easier it is when Pearl is well. I'm not talking about having a cold or whatever, I mean the difference when her muscles aren't aching and support her properly.
When she has a bad patch of hypotonia she whines constantly, about everything, she complains about her sore muscles, she cries when she is picked up because the pressure hurts her, she falls over all the time and then she cries because she has no reserves of strength left.
When she has a good run with the hypotonia she occasionally falls over, the way most three year olds do, she occasionally has crying fits and she sometimes is unreasonable. She is, in short, the sort of child who is described in parenting books, the kind of child that the techniques experts suggest actually work on.
Taking care of her when she is well is so incredibly much easier.
I had a sudden realisation today that this is part of the reason that I find parenting such heavy weather sometimes.
