NF1

The results of Ruby’s genetic test finally came through – only a ten month delay there so it’s good that I am totally not surprised at the confirmation that she does indeed have NF1.

Apparently the next step is for me to get tested. I am really hoping I do have NF1 because then ha! if I had a time machine I could totally travel back in time to when my evil sports teacher gave me a prize for being the worst tennis player she had ever seen - oh, how everyone laughed, in some cases through gritted teeth – and say See! I have a genetic condition! Now who feels like a bully?


(I should add here that this incident reflects her kinder, more professional aspects as a teacher. There was also the incident where she nearly let 40 children in her care drown at the beach. Seriously, the headline on the local news that night was that a record number of people had been rescued by the surf life guard. And who could forget the time she turned her back on my sister as she had a fit in the pool and told her not to be an attention seeker. As far as I know, she is no longer a teacher because the last I heard was she had to leave the country after having sex with a student. What a champ.)

3 Things

1, Ruby will be getting her expensive, imported, European boots in about a month. They had a pair that were not quite the right size in the shop which she tried on. She thought they were ‘tight’ and ‘boys shoes’ but was satisfied by a promise that I would decorate a pair with glittery paint. I have high hopes that lots of things will improve when she is more stable (she may sleep better if she does more exercise, may be able to toilet train if she is more stable).


2, For a nice change, both children slept well last night.


3, I bought a neat hole punch and I am amusing myself by making cards. If you would like to receive one, let me know.